In attendance: 14 people (5 PWS, 1 partner of a PWS, 1 SLP / PWS, 2 SLPs, and 5 students)
We began the meeting with introductions of names only (so we could get that done and over with). We went back around the table and elaborated on some of our recent activities. Our fearless leader, Kavan, told us about his move to Vancouver BC for several months – and therefore, Michael would be taking over as chapter leader in his absence! In addition, we talked about many of our recent travel adventures / plans. Ian talked about his recent speech therapy at PSU, and Michael & Alyssa discussed the idea of discipline, schedules, and making time for things that are important and necessary.
We also reviewed some recent interesting resources that are available on the web – for example, Jack Dorsey, the creator of Twitter and the Square, was recently interviewed on 60 minutes. Elsa was sure that he was a PWS, yet he didn’t disclose that directly – but did disclose that he had a speech / communication disorder as a child.
Another interesting resource is Dr. Gerald Maguire’s recent talk at the OHSU psychiatry grand rounds. He discussed the use of medication in stuttering treatment. A number of us attended this lecture, but it is also archived on their website for all to view (including a video / audio file AND his power point lecture). Dr. Maguire is the leading researcher in the country who studies the use of pharmacological therapy in the treatment of stuttering (go to the link below and scroll down to April 16, 2013).
Emily Pratt, a student at PSU, is starting the TEEN stuttering support group in May. More to come about that!
Also, Kerry mentioned a cool TED talk about cortisol (our stress hormone) and testosterone (the hormone that makes us feel strong and empowered) – and how just standing in a power pose (hands on hips, or hands up in the air – making yourself big) can change your hormone levels and therefore your behavior. Interesting watching!
See everyone in APRIL – our TWO YEAR ANNIVERSARY! Glenn and Kerry will be facilitating, and hope to have some awesome surprises.